Careful What You Tell the Doctor
All my friends who have experience dealing with Alzheimer's tell me to stay calm; no matter how bad things are, it only get's worse. I finally believe them and think I am ready until I have another experience, like today. I have been trying to move my mom from Utah to a facility in California where we now live. There are very few facilities that accept Alzheimer's patients and fewer still that accept Medicaid for someone with Alzheimer's. Every month or two I go on a binge calling every facility on the medicare.gov website within a 30-mile radius. All the rejection gets pretty disheartening and I feel pretty depressed, guilty and hopeless about how I can get my mom close to me while she still remembers who I am. Last week as I went through the list the first place I called had two open Medicaid beds! I kept calling and found another facility that had an opening. I was so excited and still don't know why but this is such a miracle I don't want to question it. I immediately asked the Skilled Nursing Home to send my mom's records to both places and kept praying. I found out last night that the first home on my list won't accept my mom because her diagnosis says "Dementia with behavioral disturbances." They evidently only want polite Alzheimer's patients but really, my mom is pretty polite so I was confused why this was in her diagnosis. It seems nobody knows for sure but everyone agrees with me that she doesn't have behavioral disturbances so they are changing her records and maybe if we are really lucky the nursing home here in California will still consider taking her. I don't know yet because it takes a few days to make the change. First, the doctor changed her diagnosis by way of a letter, and then her existing facility is notifying Medicaid, and then the facility can send the revised paperwork to the potential new home.
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